Anna Stuckert’s Race to Change the Future of ALS

When Anna lines up at the start of the Edinburgh Half Marathon this May, she won’t just be running 13.1 miles. She’ll be running for families affected by motor neuron disease (MND), for young researchers striving to make a difference, and for the hope that science can slow, stop, and ultimately reverse this devastating illness.

At just 28 years old, Anna is already deep into a career dedicated to understanding neurodegenerative disease. Originally from Denmark, she grew up in a small town before moving to Aarhus (Denmark) to study cognitive science — an interdisciplinary degree combining, among others, neuroscience, data science and psychology. Her fascination with the brain led her to Copenhagen, where she completed a rigorous Master’s in Neuroscience.

“It was very tough, with a very high workload,” she recalls — but it was there that her path became clear.

Discovering a Calling

During her master’s, Anna attended lectures by a young neuroscientist, Dr Ilary Allodi, whose work focused on ALS (amyotrophic lateral sclerosis), the most common form of MND, and Anna was captivated.

“That was actually where I first encountered ALS,” she says. “ Furthermore, I really enjoyed her teaching style and was fascinated by the work she was doing.”

She reached out, asking if there was a position for a masters' project was available in the lab. There was — and Anna began working on pioneering gene therapy research in a preclinical mouse model of ALS. The project progressed from direct injections to systemic, intravenous delivery — an important step toward more viable treatments.

After completing her thesis, Anna was offered a PhD position, under the supervision of Dr Allodi  as she relocated to Scotland. Now in her third year at the University of St Andrews, her research has expanded to explore the genetic links between ALS and frontotemporal dementia (FTD), two conditions that share the same mutations.

Her work sits within a vibrant Scottish research community, strengthened by a collaborative network with the Euan Macdonald Centre for Motor Neuron Disease Research at the University of Edinburgh.

Through academic afternoons and symposia, Anna has seen first-hand how donations power progress.

“I can see first-hand what kind of work it supports,” she explains. “It’s vital for early career researchers like me.”

Why Fundraising Matters

While Anna has not personally been funded by the Centre, many of her colleagues have — including one of her closest friends. And she knows how transformative that support can be.

“Early career research funding is getting increasingly more competitive,” she says. “The support allows researchers in the very early career stages to actually do the desperately needed research without having to worry about where the money will have to come from to support it”

That stability matters. It allows scientists to pursue bold ideas, generate vital data, and build careers dedicated to solving diseases like ALS.

“It really gives that push in the early start of your career,” Anna says. “To try out these research avenues.”

Donations don’t just fund experiments. They create opportunity.

“The opportunity is created through fundraisers,” she explains. “It provides new researchers with the first stepping stone, which is immensely impactful.”

A Personal Motivation

For Anna, this work is not only academic.

A member of her husband’s family passed away from ALS just a few years ago. The progression was heartbreakingly fast — around one year from diagnosis.

“It was a very rapid progression,” she says. “Seeing how a person this young can progress so rapidly was hugely impactful.”

Although she didn’t know him well personally, she has come to know the family — and the loss they carry.

“That kind of really brought the personal aspect,” she reflects. “I have a lot of interest in it from a research perspective, but a lot of the motivation also comes from that.”

It is this combination of scientific drive and personal connection that fuels her long hours in the lab — and now, her fundraising effort.

“Hopefully we can actually do something to make a difference here.”

Taking on the Edinburgh Half Marathon

Anna’s decision to run the Edinburgh Half Marathon began as a family challenge — inspired by her marathon-running mother-in-law.

When she discovered she could run in support of the Euan Macdonald Centre, the decision became simple.

“I thought it was a really good option,” she says. “To both try out a half marathon, which I really wanted to do, but also try out fundraising. I haven’t done fundraising in that sense before, so I thought it would be a good challenge and bring some extra good with it.”

Training hasn’t been without setbacks — a fall earlier this year led to a sprained knee and ankle — but she’s back on track.

“There are still more than 2 months to go, and I have a pretty good base level of fitness and back on my training plan,” she says. “I think I should be good.”

On race day, every step will represent something bigger than the finish line.

Your Support Powers Progress

Behind every breakthrough in motor neuron disease research are people like Anna — early career scientists committing their talent, time and heart to understanding and treating this devastating illness.

But they cannot do it alone.

Donations to the Euan Macdonald Centre enable vital collaboration across Scotland, fund innovative projects, and — critically — give young researchers the stability and opportunity to pursue bold ideas.

By supporting Anna’s fundraising effort, you are:

• Advancing research into ALS and FTD
• Supporting the next generation of neuroscientists
• Giving families hope for better treatments and, one day, a cure

As Anna’s story shows, research is not just data and microscopes. It is personal. It is urgent. And it is powered by people who care.

This May, she will run 13.1 miles.

With your support, her impact can go even further. 

To support Anna please donate at her Just Giving Page available at: https://www.justgiving.com/page/anna-stuckert-5